Alot has been going on in 2010 on January 4th Shianne had her pfo closed. For those of you who do not know what a pfo is it is a hole in the heart. We had no idea Shianne had this. I guess she was born with it who would have ever known? She has always been such an active child with tumbling, cheerleading and dancing. It was last fall during football season that she had told me she was having shortness of breath and felt dizzy at practice where she felt like she was going to pass out. I made a dr appointment they did a MRI scan and an echocardiogram with bubble. Sure enough there was a significant hole in her heart wich was causing lack of oxygen to her brain. Her mri revealed white matter on her brain which showed up as mini strokes. It was so shocking to our family where you think your child is so healthy and then this comes up? She now has a device in her heart that seals the hole off she is taking adult aspirin to prevent any blood clots for 6 months.
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I happened on your blog and wanted to let you know about a local CHD support group. Intermountain Healing Hearts is a non-profit organization www.ihhearts.org
We have different activities and to get heart families together, in fact we have a picnic in Bountiful on Saturday (see the website for more information).
My son who had heart surgery when he was 5 days old just turned 3 and is doing really well. We would love to help you however we can.
To join the group visit our online forum at www.ihhforum.org/forum feel free to email me with any questions at christina@intermountainhealinghearts.org
Hugs & Prayers,
Christina Davis
Heart Momma to Jacob (TGA)
www.jacobheart.blogspot.com
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